Useful Links

Resource Center

 

Useful Links

This page will assist you in finding additional information related to several programs and services for persons with disabilities. Each of these web-sites offer links to articles of interest, describe new and innovative approaches in quality of care and many also offer training opportunities.

To learn more about Delmarva or to ask for specific information go to More About Delmarva.

Individual/Family Resources

  • Cerebral Palsy Guidance
    CerebralPalsyGuidance.com is a comprehensive informational website on cerebral palsy. Their mission is one of providing quality cerebral palsy information and assistance to families in need.
    cerebralpalsyguidance.com
  • Cerebral Palsy Guide
    A national organization that helps families and individuals with cerebral palsy by providing educational materials. cerebralpalsyguide.com
  • Disability Rights Florida (formerly the Advocacy Center for Persons with Disabilities)
    A non-profit organization providing protection and advocacy services in the state of Florida.
    DisabilityRightsFlorida.org
  • Eldercare Locator
    National directory assistance service helping older persons and caregivers locate local support and resources.
    ElderCare.gov
  • Family Caregiver Alliance
    Community based non profit organization offers support services for caregivers of adults with AD, stroke, traumatic brain injury and other cognitive disorders. This site also offers information in spanish.
    Caregiver.org
  • Florida Developmental Disabilities Resources
    The goal of this site is to provide reliable and accessible information to assist individuals with developmental disabilities to make informed, efficient, and effective service delivery decisions.
    flddresources.org
  • Florida Self-Advocates Network’D
    The purpose of FL SAND is to support local grassroots development, expand the Florida Self-Advocacy Movement, provide a united voice for statewide issues and topics that are important to Florida Self-Advocates, create community awareness and promote inclusion for all.
    flsand.org
  • Human Services Research Institute
    Since 1976 the Human Services Research Institute has provided consultation and conducted research efforts at both the state and federal levels in the following focus areas: Intellectual & Developmental Disabilities, Child and Family Services,  Mental Health and Substance Use
  • Institute on Community Integration (ICI)
    The Institute on Community Integration (ICI) at the University of Minnesota publishes a monthly update with publications, Web sites and other resources of the Institute. For further information, visit their Web site at 
    ici.umn.edu.
  • Parent to Parent USA (P2PUSA)
    P2PUSA is a national non-profit organization committed to assuring access and quality in parent to parent support across the country.
    p2pusa.orgGuidance for Recruiting and Training Support Parents [pdf]
  • The Family Cafe
    A non-profit statewide organization that plans annual conferences for families and self-advocates.
    FamilyCafe.net
  • Step Up For Students
    Step Up For Students is a state-approved nonprofit scholarship funding organization that helps administer two scholarships for Florida schoolchildren: the Florida Tax Credit Scholarship Program (FTC) for low-income families and the Personal Learning Scholarship Accounts (PLSA) for children with certain special needs.
    stepupforstudents.org

Developmental Services (DS) Documents

  • The National Core Indicators is a collaboration among participating National Association of State Directors of Developmental Disability Services (NASDDDS) member state agencies and the Human Services Research Institute (HSRI), with the goal of developing a systematic approach to performance and outcome measurement.
    http://www.hsri.org/project/national-core-indicators/overview
  • Health and Human Services - Developmental Disabilities Program (MyFlorida.com)
    This site contains Fact Sheets, Frequently Asked Questions, a Calendar of Events, Contact Information and other information pertaining to the Developmental Disabilities Program.
    http://apd.myflorida.com/
  • Health and Human Services - About Florida Medicaid (MyFlorida.com)
    Medicaid is the state and federal partnership that provides health coverage for selected categories of people with low incomes. Its purpose is to improve the health of people who might otherwise go without medical care for themselves and their children. You may find additional information about Florida's Medicaid Program at
    www.fdhc.state.fl.us/Medicaid/index.shtml

Provider Organizations

  • Family Care Council Florida
    This site includes resources to support the advocacy, education and
    empowerment of individuals with developmental disabilities and their families.
    fccflorida.org
  • The ARC of the United States
    This site includes "A Family Handbook, Future Planning" and Fact Sheets on the importance of Medicaid.
    arcflorida.org
  • Yes I Can! Foundation for Exceptional Children
    The Foundation for Exceptional Children is a national organization that strives to enhance the lives of children and youth with disabilities. This site offers information and articles about programs for children throughout the country.
    yesican.org
  • The Council on Quality and Leadership
    The Council on Quality and Leadership is at the forefront of the movement to create opportunities for people to lead the lives they choose and to improve the quality of services and supports for people with disabilities and mental illness.
    thecouncil.org
  • Florida Developmental Disability Council (FDDC)
    The FDDC guides development and administration of services for people with developmental disabilities by planning and funding research, innovations, and programs to improve the quality of their lives.
    fddc.org
  • The Joint Commission
    The Joint Commission evaluates and accredits nearly 17,000 health care organizations and programs in the United States. An independent, not-for-profit organization, JCAHO is the nation's predominant standards-setting and accrediting body in health care. Since 1951, JCAHO has developed state-of-the-art, professionally based standards and evaluated the compliance of health care organizations against these benchmarks.
    jointcommission.org
  • The Florida Association of Rehabilitation Facilities (Florida ARF)
    Community agency group whose goal is making a meaningful difference in the lives of individuals with disabilities.
    floridaarf.org

Government Agencies 

  • MyFlorida.com (link to developmental disabilities program)
    Provides a link to the Developmental Disabilities program which includes numerous updates to policy and procedures related to medicaid waiver services provided in Florida.
    http://apd.myflorida.com
  • Agency for Health Care Administration (AHCA)
    This site describes the Florida Medicaid program. It includes policies, procedures, updates and access to the Developmental Services Home & Community Based Waiver Handbook.
    www.fdhc.state.fl.us
  • Economic Self Sufficiency
    State office providing assistance to eligible families through food stamps, Medicaid and other financial assistance.
    www.dcf.state.fl.us/ess
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